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FAMILIAL AMYLOIDOSIS
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www.amyloidosisonline.com

"Some day this disease will be considered a treatable nuisance"
-- Dr. Vescio from Cedars Sinai

Amyloidosis Symposium 2012
Amy Awareness Animation
“The Young and The Restless” storyline
Hereditary(Familial) Amyloidosis




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Support Group Tips

FOR THE MONTH OF MAY
we review the Most Common Symptoms of Amyloidosis Before Treatment

Amyloidosis Support Groups
Download our
'Amyloidosis
Overview'

brochure (.pdf 758kb)
Also available free via email
or at Amyloidosis
Support Group Meetings.

Welcome to the Amyloidosis Support Groups website. We hope you will find everything you need to know about what is happening in the world of support and awareness for Amyloidosis patients, care givers and those who have lost some one to this insidious disease.

Our main goal is to provide information of a supportive nature, and leave the medical education to the doctors. We ask Amyloidosis Specialists to guest speak when possible at our Amyloidosis Support Group Meetings. Awareness is important and makes wonderful projects for the groups as well as fundraisers for research.

In 2004 we started over a dozen support groups around the U.S. and helped in Israel and Australia. Now in our 8th year, with over 20 groups in the USA and still growing, it is our goal to continue to start new groups, while maintaining those already established, and help them to be self-supporting and self-sustaining. One of the major ways of doing this is via via the receipt of donations. Donations are welcome for the note cards and other awareness items - and in general to help the Amyloidosis Support Groups. We are a 501 (c)3 Non Profit Charity and donations may be tax deductible (please check with your tax specialist).

We thank the Amyloidosis Doctors that have helped us with meetings and information, and so many others, too many to mention here. All are appreciated more than they will ever know. They also help as advisors, (see the about us section) for our on line group, www.amyloidosisonline.com. We can't leave out the hospitals, that make available rooms for our meetings, and all of those special people that helped us launch the web site and the meetings, from Steve, Mike, Andy, and Robin, the Madsen’s, Prices, Lado’s, Sue Smith, Steve, Jennifer, the late Jim Cashman, Ellen, Jean & James, and so many more too numerous to mention. Onward and upward, and one day this disease to quote Dr. Vescio of Cedars Sinai will be a “treatable nuisance”.

We are dedicated to the Support of Amyloidosis patients and care givers and former care givers. Our goals are to set up and help maintain peer group Amyloidosis Support Meetings, and by raising funds through donations, help the groups to be self sustaining, and on going as long as necessary. We will also set up new groups where needed when funds allow. Further goals and our mission statement are elsewhere on this site.

The President of the Amyloidosis Support Groups is Muriel Finkel, Vice President Jennifer L. Celano, Treasurer Stephen D. Finkel, and Secretary Elinda Lado. For more information about Amyloidosis Support Groups you may e-mail muriel@finkelsupply.com or call toll free USA 866-404-7539, or 630-350-7539.

Muriel Finkel
President
Amyloidosis Support Groups Inc.   
Finkel Supply Inc.
AMY - Where Are We Now and Where Are We Heading?
Click Here to Download Dr. Merrill D. Benson’s TTR Booklet
Read the CAP Article "Amyloidosis Hiding In Plain Sight"
NORD’S PHYSICIANS GUIDE TO AMYLOIDOSIS
Texts about amyloidosis:
AMYLOID AND RELATED DISORDERS
AMYLOIDOSIS: DIAGNOSIS AND TREATMENT
COMPANION TO PERIPHERAL NEUROPATHY

232 Orchard Drive
Wood Dale IL 60191
Toll Free Hot/Help Line 866.404.7539

630-350-7539
847-350-7540
847-350-0577 - fax
The people who make a difference
in your life are not the ones with
the most credentials, the most
money, or the most awards.
they are the ones that care.
-author unknown-



Amyloidosis Support Groups
AmyloidosisSupport.com
1-866-404-7539 TOLL FREE USA



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